Genetic and Rare Diseases Information Center
genome.gov
Genetic and Rare Diseases Information Center
The Genetic and Rare Diseases Information Center helps people find useful information about genetic and rare diseases.
Dec 13, 2024
Rare Disease Stories
11K views · 202 reactions | Rare Disease Day 2021 official video - 6...
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11K views · 202 reactions | Rare Disease Day 2021 official video - 6...
FacebookRare Disease Day
11.3K views3 weeks ago
57K views · 4.5K reactions | Support Milaap Rare Disease Fund: https://milaap.org/stories/support-milaap-rare-disease-fund-yogita-sm Yogita stayed on ventilator support for more than 50 days. She had lost all movement in her body, from the neck down. But your support saved her. However, there are many who need a helping hand to overcome rare diseases. | Milaap | Facebook
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57K views · 4.5K reactions | Support Milaap Rare Disease Fund: https://milaap.org/stories/support-milaap-rare-disease-fund-yogita-sm Yogita stayed on ventilator support for more than 50 days. She had lost all movement in her body, from the neck down. But your support saved her. However, there are many who need a helping hand to overcome rare diseases. | Milaap | Facebook
FacebookMilaap
57.7K views4 weeks ago
191K views · 67 reactions | “I find so much hope for my children with Alpha-1. We've come a long way with research, and this gives me great strength and hope.” Join us as we hear from fellow Sanofians about what it’s like to live with, or care for someone with a rare disease. We are privileged to learn from the rare community both inside, and outside, our walls. #RareDiseaseDay | Sanofi | Facebook
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191K views · 67 reactions | “I find so much hope for my children with Alpha-1. We've come a long way with research, and this gives me great strength and hope.” Join us as we hear from fellow Sanofians about what it’s like to live with, or care for someone with a rare disease. We are privileged to learn from the rare community both inside, and outside, our walls. #RareDiseaseDay | Sanofi | Facebook
FacebookSanofi
411K views1 week ago
Top videos
Rare Genetic Diseases
Rare Genetic Diseases
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Only 30 children have been diagnosed with this rare genetic disease. Why are they coming to Dallas?
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Only 30 children have been diagnosed with this rare genetic disease. Why are they coming to Dallas?
wfaa.com
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Rare Disease Awareness
1.2M views · 10K reactions | On Rare Disease Day, discover Zuzia's story. Get inspired by her positivity and learn how the EU is working to improve awareness, diagnosis and treatment of rare diseases. #ICountonEurope | European Parliament | Facebook
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1.2M views · 10K reactions | On Rare Disease Day, discover Zuzia's story. Get inspired by her positivity and learn how the EU is working to improve awareness, diagnosis and treatment of rare diseases. #ICountonEurope | European Parliament | Facebook
FacebookEuropean Parliament
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7.8K views · 256 reactions | Are you raising awareness for Rare Disease Day this year? Remember to use #RareDiseaseDay when posting about your events. illuminations, and activities! Using #RareDiseaseDay helps members of the rare disease community find each other, build solidarity, and get involved in Rare Disease Day. Find out how you can get involved: https://cutt.ly/dPlzx3U | Rare Disease Day | Facebook
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7.8K views · 256 reactions | Are you raising awareness for Rare Disease Day this year? Remember to use #RareDiseaseDay when posting about your events. illuminations, and activities! Using #RareDiseaseDay helps members of the rare disease community find each other, build solidarity, and get involved in Rare Disease Day. Find out how you can get involved: https://cutt.ly/dPlzx3U | Rare Disease Day | Facebook
FacebookRare Disease Day
7.8K views1 week ago
624 reactions · 33 shares | Join #LightUpforRare and raise awareness for 300 million people living with a rare disease | Rare Disease Day | Facebook
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624 reactions · 33 shares | Join #LightUpforRare and raise awareness for 300 million people living with a rare disease | Rare Disease Day | Facebook
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Rare Genetic Diseases
Rare Genetic Diseases
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