Thank You for your steadfast support of Global Genes in 2024! | Global Genes
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Thank You for your steadfast support of Global Genes in 2024! …
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Happy Holidays from All of Us at Global Genes! | Global Genes
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Happy Holidays from All of Us at Global Genes! | Global Genes
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There’s No Place Like Hope! 🪄🌈 Join Global Genes for an inspiring week in Kansas City, MO from Sept. 25th - 28th to connect, collaborate, and celebrate what it means to be a RARE advocate. Join others to forge meaningful connections, create future collaboration opportunities, and build a community founded on research, advocacy, and HOPE! 💙 Now’s the time to secure your registration HERE: https://web.cvent.com/event/e3a2427c-d9f7-4e73-a08c-01ec43a3981b/regProcessStep1/?utm_source=fb&utm_medium
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There’s No Place Like Hope! 🪄🌈 Join Global Genes for an inspiring wee…
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🚨 BIG NEWS 🚨 Global Genes is turning 16 next week! That means since 2008, we’ve dedicated ourselves to making significant awareness efforts, connections, and successes within the rare disease community 🎉 To celebrate, we’ve asked those who have worked alongside Global Genes to talk about memories, experiences, and the impact that Global Genes has had on their lives. Nicole Boice, Founder and Chief Mission Officer, sat down to reflect on what Global Genes is to her in a series of short videos.
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Introducing the nominees for the 2024 RARE Champions of Hope! We extend our heartfelt congratulations to all nominees. Stay tuned as we reveal and honor the winners at the highly anticipated 2024 RARE Champions of Hope Celebration during Week in RARE. Learn more about these awards by clicking the resources link in our bio. Learn more about these awards: https://go.globalgenes.org/3XlajD7 #WeekinRARE #ChampionsofHope #ChampionsofHope2024 #RAREAdvocacySummit #CareAboutRare #PatientAdvocacy #Global
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Introducing the nominees for the 2024 RARE Champions of Hope! …
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95% of rare diseases lack an FDA approved treatment, and it takes on average 7.3 years to diagnose a rare disease. These are the odds that young Hannah is facing while diagnosed with a deadly, neurodegenerative rare disease called GAN. Watch this video to witness the surprising hope that comes from Hannah’s story. | Global Genes
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