Governor proposes $2M to fund testing in Maryland for rare disease
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Metachromatic leukodystrophy (MLD), and Duchenne Muscular dystrophy (DMD) have been added to the RUSP! 👣 💜 🦓 Newborn screening turns a few drops of blood into a lifetime- catching the invisible… | Francyne Kubaski
Metachromatic leukodystrophy (MLD), and Duchenne Muscular dy…
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linkedin.com
Hear the inspiring story of Ava, one of the first children in the world to receive gene therapy for metachromatic leukodystrophy (MLD): http://ms.spr.ly/6186nCVqy | Revvity
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'It's their legacy': Father hails approval of MLD drug
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Secretary Kennedy: “With current levels of screening, most MLD and DMD diagnoses are too late. This is a major reason why approximately 30% of the children with rare diseases do not make it to age 5. States should choose to adopt our RUSP recommendations.” | U.S. Department of Health and Human Services
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Secretary Kennedy: “With current levels of screening, most MLD an…
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